Blue Infusion Chair Blues

Got my sixth chemo treatment today while I was in the blue chair in the  treatment room all hooked up to pumps and tubes. I'm now  hooked up to the portable pump  with the 5-FU until Friday.  White blood cell count was up just enough to go ahead with treatment after the three Neupogen shots last week but was still pretty low, so  I'm scheduled to get four shots next week.  Yuck!

Our daughter is coming in from Australia for a two week visit on Monday. I was able to plead with the scheduling nurses and get all the shots scheduled for first thing in the morning so  we don't have   the four days  broken up by mid-day runs to the clinic. Yay!!

Not feeling all that great tonight, having a little nausea for the first time, along with the fatigue and general  feeling of malaise.  Hopefully tomorrow will be better and I can go back to feeding hummingbirds, playing with the dogs and enjoying  Fred and Flo, the  pink plastic flamingos with panache. I may change Fred's name to Floyd, what do you think?

Gut Feelings- Half Way There!

When I went back for my third chemo treatment  on  June 24th the blood tests came back with flags all over the place because my white  blood cell count was  way down. This is known as neutropenia and is not all that uncommon while on chemo. The oncologist seemed to think that an extra week would give the white cells time to build back up, so treatment was rescheduled for the next week.  Sure enough when I returned the following week, the blood test showed the counts were back up.  They weren’t up a lot, but enough to continue the chemo. 

I was also beginning to   feel the effects of yet another side effect of chemo. Researchers call it chemotherapy-induced cognitive dysfunction/impairment or cancer-therapy associated cognitive change. Those of us who have it call it chemo-brain. On the one hand, it's quite frustrating to keep experiencing memory lapses and brain farts. On the other hand, it's nice to have something to blame besides old age!  It’s as though your brain is a big, overstuffed, disorderly filing cabinet: everything is in there, but it’s in no particular order. So in the middle of a sentence, the word that was on the tip of your tongue just disappears, or you  forget the name of someone  you’ve known for years.  You have to go digging in the recesses of your brain file to find it, sometimes successfully, sometimes not. 

 We ran into the same problem of low white cell counts  when I went for  my fourth treatment. This time the three week wait hadn't helped, so  the oncologist decided I would benefit from  Neupogen shots and another week's delay.  Neupogen is known as a granulocyte colony-stimulating factor analog , which means that it is a substance that stimulates the production, maturation and activation of neutrophils (a type of white blood cell) from the bone marrow. It also causes some pretty nasty side effects, including   bone pain. I was scheduled to receive three shots over three days. When I  went in for the second shot I had mild to moderate low back pain, and the nurse told me that  many patients find that taking a Tylenol before receiving the shot  seems to help, and others have reported that an antihistamine  like Claritin works also. If only I  had known that BEFORE I  got the shot! That night I woke up with every bone in my body hurting, even my skull, which felt like it might split open.  It was horrible. I took a Tylenol and was  able eventually to go back to sleep.  Heeding the nurse's advice, I took another Tylenol before going in for the third shot.  It worked like a charm- no more bone pain! My blood test  the next week when I went in for the fourth chemo treatment showed that  my white cell counts were back up.  Both my lymphocytes and granulocytes were almost back to normal. So now I’m halfway through the  chemo! Four more to go! You can see how happy I am about that in this pic.  

The infusion chairs are pretty comfortable, but I'm so  lightweight that I need help getting mine to recline. I usually take a shawl or pashmina to put round my shoulders and the center supplies us with blankets to keep us warm- the purple fleece blanket was made by some volunteers, and I was told it is  my blanket to keep and bring back every week. We also have a good wifi connection so  we're able to use our electronic devices.  I  take my Kindle Fire so when I'm not   talking to  my infusion mates or the nurses, I can  check e-mail, play on facebook, stream movies from Amazon, Netflix or PBS, read or listen to music.

 I received three more Neupogen shots this week.  I had no bone pain, thanks to the Tylenol, and was able to attend yoga class Monday night. I  got the third shot in the series yesterday and  am hoping  everything  will be on target when I go for my fifth treatment next Wednesday.